| Recommendations for improving the quality of rare disease registries Y Kodra, J Weinbach, M Posada-De-La-Paz, A Coi, SL Lemonnier, ... International journal of environmental research and public health 15 (8), 1644, 2018 | 169 | 2018 |
| Nonurgent patients in the emergency department? A French formula to prevent misuse S Gentile, P Vignally, AC Durand, S Gainotti, R Sambuc, P Gerbeaux BMC health services research 10, 1-6, 2010 | 161 | 2010 |
| The TREAT‐NMD D uchenne Muscular Dystrophy Registries: Conception, Design, and Utilization by Industry and Academia CL Bladen, K Rafferty, V Straub, S Monges, A Moresco, H Dawkins, A Roy, ... Human mutation 34 (11), 1449-1457, 2013 | 117 | 2013 |
| A personalist approach to public-health ethics C Petrini, S Gainotti Bulletin of the World Health Organization 86 (8), 624-629, 2008 | 93 | 2008 |
| ‘You should at least ask’. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research P McCormack, A Kole, S Gainotti, D Mascalzoni, C Molster, H Lochmüller, ... European Journal of Human Genetics 24 (10), 1403-1408, 2016 | 92 | 2016 |
| Improving the informed consent process in international collaborative rare disease research: effective consent for effective research S Gainotti, C Turner, S Woods, A Kole, P McCormack, H Lochmüller, ... European Journal of Human Genetics 24 (9), 1248-1254, 2016 | 81 | 2016 |
| Meeting patients’ right to the correct diagnosis: ongoing international initiatives on undiagnosed rare diseases and ethical and social issues S Gainotti, D Mascalzoni, V Bros-Facer, C Petrini, G Floridia, M Roos, ... International journal of environmental research and public health 15 (10), 2072, 2018 | 66 | 2018 |
| The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration D Taruscio, E Mollo, S Gainotti, M Posada De la Paz, F Bianchi, L Vittozzi Archives of Public Health 72, 1-8, 2014 | 65 | 2014 |
| Decentralized clinical trials (DCTs): A few ethical considerations C Petrini, C Mannelli, L Riva, S Gainotti, G Gussoni Frontiers in public health 10, 1081150, 2022 | 56 | 2022 |
| The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers S Gainotti, P Torreri, CM Wang, R Reihs, H Mueller, E Heslop, M Roos, ... European Journal of Human Genetics 26 (5), 631-643, 2018 | 52 | 2018 |
| The current situation and needs of rare disease registries in Europe D Taruscio, S Gainotti, E Mollo, L Vittozzi, F Bianchi, M Ensini, M Posada Public health genomics 16 (6), 288-298, 2014 | 43 | 2014 |
| Informed consent in clinical research in France: assessment and factors associated with therapeutic misconception IS Durand-Zaleski, C Alberti, P Durieux, X Duval, S Gottot, P Ravaud, ... Journal of medical ethics 34 (9), e16-e16, 2008 | 40 | 2008 |
| From compulsory to voluntary immunisation: Italy’s National Vaccination Plan (2005–7) and the ethical and organisational challenges facing public health policy-makers across Europe NE Moran, S Gainotti, C Petrini Journal of medical ethics 34 (9), 669-674, 2008 | 33 | 2008 |
| Ethical issues in uterine transplantation: psychological implications and informed consent C Petrini, S Gainotti, A Morresi, AN Costa Transplantation Proceedings 49 (4), 707-710, 2017 | 29 | 2017 |
| The quality of rare disease registries: evaluation and characterization A Coi, M Santoro, A Villaverde-Hueso, M Lipucci Di Paola, S Gainotti, ... Public Health Genomics 19 (2), 108-115, 2016 | 28 | 2016 |
| Rare disease registries classification and characterization: a data mining approach M Santoro, A Coi, M Lipucci Di Paola, AM Bianucci, S Gainotti, E Mollo, ... Public health genomics 18 (2), 113-122, 2015 | 28 | 2015 |
| A model for the European platform for rare disease registries L Vittozzi, S Gainotti, E Mollo, C Donati, D Taruscio Public Health Genomics 16 (6), 299-304, 2014 | 25 | 2014 |
| Ethical models underpinning responses to threats to public health: a comparison of approaches to communicable disease control in Europe S Gainotti, N Moran, C Petrini, D Shickle Bioethics 22 (9), 466-476, 2008 | 24 | 2008 |
| Insurance policies for clinical trials in the United States and in some European countries S Gainotti, C Petrini Journal of Clinical Research and Bioethics 1 (1), 2010 | 22 | 2010 |
| How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia F Galeotti, N Vanacore, S Gainotti, F Izzicupo, F Menniti-Ippolito, C Petrini, ... Drugs & aging 29, 607-614, 2012 | 19 | 2012 |
