Peer support and mentorship in a US rare disease community: findings from the cystinosis in emerging adulthood study M Doyle The Patient-Patient-Centered Outcomes Research 8, 65-73, 2015 | 64 | 2015 |
Controversies and research agenda in nephropathic cystinosis: conclusions from a “Kidney Disease: Improving Global Outcomes”(KDIGO) Controversies Conference CB Langman, BA Barshop, G Deschênes, F Emma, P Goodyer, G Lipkin, ... Kidney international 89 (6), 1192-1203, 2016 | 62 | 2016 |
‘Cancer doesn’t have an age’: Genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18–24 A Werner-Lin, LM Hoskins, MH Doyle, MH Greene Health:, 2012 | 62 | 2012 |
That eagle covering me: transitioning and connected autonomy for emerging adults with cystinosis M Doyle, A Werner-Lin Pediatric Nephrology 30, 281-291, 2015 | 39 | 2015 |
“My funky genetics”: BRCA1/2 mutation carriers' understanding of genetic inheritance and reproductive merger in the context of new reprogenetic technologies. A Werner-Lin, LR Rubin, M Doyle, R Stern, K Savin, K Hurley, M Sagi Families, Systems, & Health 30 (2), 166, 2012 | 36 | 2012 |
Giving credence to the experience of X-linked hypophosphatemia in adulthood: an interprofessional mixed-methods study M Hughes, C Macica, C Meriano, M Doyle Journal of Patient-Centered Research and Reviews 7 (2), 176, 2020 | 26 | 2020 |
Clinical myopathy in patients with nephropathic cystinosis R Sadjadi, S Sullivan, N Grant, SE Thomas, M Doyle, C Hammond, ... Muscle & Nerve 61 (1), 74-80, 2020 | 24 | 2020 |
Leadership, literacy, and translational expertise in genomics: Challenges and opportunities for social work A Werner-Lin, JLM McCoyd, MH Doyle, SJ Gehlert Health & Social Work 41 (3), e52-e59, 2016 | 24 | 2016 |
Nutrition assessment and hormonal influences on body composition in children with chronic kidney disease L Graf, S Candelaria, M Doyle, F Kaskel Advances in chronic kidney disease 14 (2), 215-223, 2007 | 20 | 2007 |
Stages of change and transitioning for adolescent patients with obesity and hypertension M Doyle, R Siegel, K Supe Advances in chronic kidney disease 13 (4), 386-393, 2006 | 19 | 2006 |
Health-care transition: a vital part of care, growth, and change for pediatric patients LF Davidson, MH Doyle Pediatrics in review 42 (12), 684-693, 2021 | 18 | 2021 |
Discussing future goals and legal aspects of health care: essential steps in transitioning youth to adult-oriented care LF Davidson, M Doyle, EJ Silver Clinical Pediatrics 56 (10), 902-908, 2017 | 18 | 2017 |
Multidisciplinary support for healthcare transitioning across an urban healthcare network LF Davidson, M Doyle, EJ Silver Journal of Pediatric Nursing 30 (5), 677-683, 2015 | 16 | 2015 |
Conference Participants. Controversies and research agenda in nephropathic cystinosis: conclusions from a" kidney disease: improving global outcomes"(KDIGO) controversies … CB Langman, BA Barshop, G Deschênes, F Emma, P Goodyer, G Lipkin, ... Kidney Int 89 (6), 1192-203, 2016 | 12 | 2016 |
Transition navigator intervention improves transition readiness to adult care for youth with sickle cell disease D Manwani, MH Doyle, L Davidson, M Mallea, EJ Silver, J Jackson, ... Academic Pediatrics 22 (3), 422-430, 2022 | 11 | 2022 |
Long‐term psychosocial outcomes of adults transplanted in childhood: a social work perspective L Puma, M Doyle Pediatric Transplantation 25 (1), e13859, 2021 | 11 | 2021 |
Family strategies for living with rare disease: the experience of cystinosis M Doyle, A Werner-Lin Journal of the Society for Social Work and Research 7 (3), 547-567, 2016 | 10 | 2016 |
Transnational caregiving and grief: an autobiographical case study of loss and love during the COVID-19 pandemic GM Hinkson, CL Huggins, M Doyle OMEGA-Journal of Death and Dying 90 (1), 5-20, 2024 | 8 | 2024 |
Clinical trial readiness study of distal myopathy and dysphagia in nephropathic cystinosis R Sadjadi, S Sullivan, N Grant, SE Thomas, M Doyle, C Hammond, ... Muscle & Nerve 62 (6), 681-687, 2020 | 8 | 2020 |
An intensive transition navigator intervention improves transition readiness to adult care in youth with sickle cell disease D Manwani, L Davidson, E Silver, R Chhabra, C Minniti, D Rastogi, ... Blood 130, 4634, 2017 | 7 | 2017 |